About the POHA:
Progressive Osseous Heteroplasia Association

What is POH (Progressive Osseous Heteroplasia)?

The Progressive Osseous Heteroplasia Association or POHA, supports education, research, and communication. Progressive Osseous Heteroplasia is a disease in which normal bone forms in muscles and connective tissue.

An important note about pohdisease.org

While the POHA tries its best to ensure that the information on this site is medically accurate, this site should not substitute for the advice of a physician.

Contacting POHA

Progressive Osseous Heteroplasia Association
1460 Bolingbrook Drive
Columbus, Ohio   43228

Secondary location

5 Gladiola Lane
Lumberton, NJ 08048

Telephone: 614.887.POHA (7642)

E-mail: Info@pohdisease.org


The POHA  hosted a national symposium in June of 2016.  This symposium served the POH community with medical research updates given by  Dr. Kaplan, Dr. Shore and their student researchers.  A summary of this information will be added to the site when it becomes available.

Families and patients bonded and connected through various sessions and activities.  It truly made POH not feel so ultra rare and grew our community by numbers and by creating friendships.

The symposium was followed by a wine tasting fundraiser which was very well attended and enjoyed by all.  If you missed out on these events please make sure we have your current address so you are able to receive information.  You are also invited to host your own events and fundraisers to continue our fight to find a cure for POH.  Members of our community have raised over $150,000 in the past eight years.  Please join our fight.